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cherryblosom |
My story - new to the board |
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Hey there fellow floaters, firstly I am sorry for every one of you that has to suffer. I have been following the board for the last 10 months, ever since the
evil floaters decided to rear their ugly squiggles, dots and cloudy heads. It is great to have a community that I can share this with, as I have been feling
very depressed since it happened and my personality has completely changed. Here's my story - I was going through a lot of stress at the time and was
suffering from terrible headaches, migraines with visual aura (which lasted for about 20 mins), and fatigue. I was probably at the peak of my stress when I was
driving to visit my mum, half way through the 3 hour journey I had a very debilitating migraine attack where I had to stop the car holding my face until there
pain passed, the pain felt as though it was in and behind my eyes. The next day when I woke up I noticed a very small and defined squiggle in my left eye
floating around, I could see how it was all linked with the cells and lines, I had never heard of foaters so thought my eye had been scratched or had something
in it. Over the next week it became very bothersome as it was in my field of vision and had grown and when i was outside it was very large, so I went to the
eye hospital who examined my eyes and advised they thought it was a problem with the brain because I have had meningitis before and I also suffer from
fibromyalgia so I was sent for an MRI scan and saw a neurologist - all tests proved fine. Nothing was diagnosed at this point, not even that it could be a
floater. After that my eyes started to feel very heavy, very painful to move, almost like they were being twisted from behind, and I developed a real
sensitivity to light - my floaters then started to appear thick and fast. After another couple of eye dilation tests, I was advised that they could see changes
of my vitreous and I was also sent to have a 24-hour glaucoma test as my optic nerve looked damaged, these tests have shown that I have fluctuating eye
pressures and they are keeping an eye on me for glaucoma. The last visit with the opthamolgist I had I told him how the floaters are effecting my life - I fear
going outside and will not leave the house which has damaging effects on my 3 year old son and my relationship with my husband, I have quit my job because the
drive in was such a nightmare and having to deal with the light shining through the windows. My vision is also very blurry and I can not recognise peoples
faces - I believe it is the floaters that are making my vision blurry because when I squint my eyes they are everywhere. I am used to having a successful
career, and loved nothing more than sunbathing and being outside. I am now, at 30 years old, confined to dark rooms and unable to take my son outside. I told
the opthamologist that I wanted an FOV and that I had been in contact with a surgeon who could perform it (Mr Patel) but could not afford the quoted £4000 for
each eye. To my surprise he referred me to a vitreo surgeon and told me it was performed on the NHS, he said the referral will take 3 months and I would hope
to get surgery 3 months after, so I would be floater free within 6 months. My life suddenly seemed worth living again. My referral came through within a month,
and I had my appointment about 2 weeks ago, the surgeon said he could see my floaters but they are just normal and should not be causing the distress that I
described, he said that I will get used to them and in the meantime he would get my doctor to refer me to a pyschologist to deal with them but he would no way
refer me to have an FOV, when I told him I would get it done privately he told me I was insane and anybody performing any kind of treatment for floaters (laser
or FOV's) are charlatons who are robbing people for money and possibly eye sight. I left the room in floods of tears. I am now so deflated, distressed and
confused, I honestly don't know how I am going to cope. I am not sure whether to believe the surgeon and I am now looking in to other options and have been
in contact with Brendan Moriarty's clinic for info on laser - I live in south west england. Can anybody advise on my situation; who has had good/ bad
results of laser or FOV, who is the best person to see for my type of floaters; the right eye has one large squiggle type floater, which is linked to strings
and cloud and is very big, it branches off and has millions of dots swirrling around, it is almost like the smoke and strings link it as the defined squiggle
bit is further away, left eye has 3 floaters which lay lower than my field of vision normally, occasionally rising but more clump type floaters which
aren't as bothersome, I can live with these, not ideal but they are like annoying flies which i don't focus on as much. Any advice will help, or even
if you just want to share you story, I really hope one day in the near future we can all be cured.
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Rockstarpaul |
#1 | |||
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Hi cherryblossom,
Sorry to hear of your dreadful time and your floaters situation. I had a very similar experience with the NHS which left me feeling helpless and utterly depressed. I eventually had an FOV with Dr Patel in July (had to pay as NHS did not want to know) and all I can say is, what a huge difference. Work has become easier, relationships are no longer so strained and I feel like I have my old life back again. I am 32 and had floaters in both eyes, left worse than the right. Like you, the fees for going private are crippling and as a result I had to settle for just getting one eye done with the intention of doing the other in a year or 2's time. My left eye is 100% floater free and has made a huge difference to my quality of life. My right eye still bothers me but having one clear eye is incredible and is a massive phycological boost. My advice is see Dr Patel and get your worse eye done. Beg, borrow or steal the money, just get it done, it works no matter what your insensitive surgeon said. Just look on this board for recent successful operations, particularly with Dr Patel, he really is a caring, understanding and skilled surgeon. £4000 is a lot of money but you won't even be earning money if you stay at home in dark rooms all day. Like you, I have children and they saw how miserable I was. It was no fun for them or my wife who took the brunt of my mood swings. Now things are harmonious like they should be. The point I am trying to make is there is hope. This time last year I was a week into just getting my floaters and was a wreck. Now I'm sitting here typing to you with a clear left eye and feeling much much happier. You have to help yourself and see Dr Patel or some other surgeon you are happy with. I swear to you it will be the best money you ever spent, you only have one pair of eyes and you can get some pretty low interest loans at the moment. If you have a mortgage you could even add it to that. I wish you all the luck in the world. If you want to ask any questions regarding anything, particularly my surgery with Dr Patel, don't hesitate to ask or send me a private message. Cheers, Paul. |
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cherryblosom |
#2 | |||
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Hi Paul, many thanks for your reassuring response - it's great to hear about your successful outcome from your FOV - fantastic for you. Hearing your
outcome has definitely got my mind back on track to getting an FOV - I have just been reading your posts and understand that Dr Patel used the 20g - do you
know what the difference is and also what does sutureless mean? I really am not very well researched yet, do you know what the best technique with limiting
side effects is? Also how does he induce a PVD? I wonder if my vitreous is already liquifying it makes this easier. I need to read some more posts because I
haven't read a bad one about FOV yet although I do know there a lot of risks, including being able to see the remaining vitreous left - sorry one more
question, do you know if Dr Patel usually takes all the vitreous or leaves some behind? The last surgeon I saw couldn't emphasise the risks enough to me
and said that nobody would perform such a risky op on my otherwise healthy eyes whether done privately or not! Many thanks again.
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Rockstarpaul |
#3 | |||
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Hi,
Ok, 20g, 23g and 25g all refer to the size of the tools that the surgeon uses to make his incisions. Confusingly, 20 is bigger than 23 and so on. Dr Patel did use 20g and did for my op too. Because he used a 20g instrument it was necessary for me to have stitches, also known as sutures. Now Dr Patel has switched to the smaller 23gauge instruments, sutures are no longer needed so it is termed sutureless. A member on this board called Dammie had problems when his surgeon went sutureless and so it maybe worth reading up on some of his posts, (use the search tab at the top of the page). That said, plenty of people on here have had a sutureless FOV with no problems and Dr Patel is confident of his abilities. No stitches would certainly make for a quicker recovery with minimal discomfort. I am not entirely sure how PVD (posterior vitreous detachment) is induced (just gentle tugging I think) but I know how easy it comes away varies from person to person. Dr Patel said mine was one of the easiest he has ever done, whereas Loughrey who also posts on here was the opposite. One last thing. You mentioned about the risk of being able to see the edge of the vitreous after the op. This freaked me out too when I was considering the operation but it isn't actually as bad as what it sounds like and not even permanent, (from what I've read on here and my own experience anyway. I very occasionally see flashing in the periphery of my vision but it has almost completely gone now. Expect all symptoms to disappear in between 9 to 12 months if all goes well. All the best and try to stay positive. You may find "My consultation with Dr Patel" thread if you use the search facility. This will give you loads of info. Cheers, Paul |
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Rockstarpaul |
#4 | |||
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http://floatertalk.yuku.com/topic/2695 Here is the link for the thread I mentioned. Loughrey also did a
similar thread which is also very helpful.
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speedy12 |
#5 | |||
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Hi cherryblossom,
I am sorry and devastated to hear about the distress that floaters have forced you to live through. It is really a nightmare that floaters turn our life upside down, everything changes for worse and anything that has been the source of joy before is no longer so. Going outside, going on holiday and even interacting with others is stressful day in, day out. Considering how bad your floaters are, the fact that you have trouble recognizing faces because of those hazy areas blurring the view and that you have renounced your job as you can no longer stand being outside, I don't think it makes any more sense to suffer and put up with such a miserable life. I think that you should do a vitrectomy no matter what this stupid and indifferent surgeon told you. It is a risky surgery but you will be fine in the hands of a skilled surgeon who knows his stuff and feels confident of his abilities. Knowing that there is some room for manoever will be fortifying and will help you do research and choose the best surgeon. All the best for your plans. BTW Are you myopic? If not, then the risks are even smaller. |
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Scott Geller MD |
Fascinating case..... | #6 | ||
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If you do get your FOV, take the time to email me your experience and result. I'd really like to know.
And FYI, your experience with the UK NHS is the main reason most Americans reject OBAMACARE.....your physician becomes an agent of the State......not YOUR advocate. In the USA you till get what you pay for.
Scott Geller MD Ophthalmology Eye Floaters Specialized Interest Fort Myers, Florida, USA www.vitreousfloaters.com tel 239-275-8222 SKYPE: scottgellermd
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dammie |
#7 | |||
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But if you had sucessful career, how it is possible you cannot affort surgery?
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speedy12 |
#8 | |||
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It is not the question of a surgeon working in the public sector vs a private one. It is the question of doctors considering it unthinkable to operate on the
eye just to remove floaters. There is a general consensus in the medical community that it is an outrageous act to perform so even private doctors refuse to do
it. I just think it is so ridiculous that in the face of so much suffering, visual disturbance and virtual impairment in daily life, the doctors still say such
a thing and refuse to offer this unique treatment as laser many times fails to remedy this problem.
What are we then supposed to do? |
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Regretor |
#9 | |||
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Exactly. This has got nothing to do with public health care. Actually, if anything, the number of people who don't undergo FOV just because they don't
have the funds yet are more than other factors. If health care system was the cause, there would've been hundreds of surgeons in the USA who would do FOV,
while we all know there are just a select few.
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cherryblosom |
#10 | |||
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Paul, your story is very encouraging to read and I really appreciate your insight in the various procedures available, you have been very kind taking time to
hear my story and offer your advice back. Speedy12, thank you so much for your kind and understanding response, I am with you on the vitrectomy, after reading
such positive outcomes I really do feel it will be invaluable to my quality of life. I am only slightly myopic which also came at the same time the floaters
appeared. What stage are you at with coping/ treating your floaters? Dammie, when I say I can not afford the vitrectomy I am talking about disposable income,
as a family we have big outgoings like mortgage, schooling and we are saving at the moment to upsize which makes £8,000 a huge amount to spend on myself,
leaving my job left us on one income and my husband has suffered a 20% pay decrease as a result of the recession. I have from today though started working for
myself from home so hopefully the money will not be too out of reach. My husband has already told me that if I really want the operation we could use some of
our saved funds, but I would then have the added guilt of if it went wrong the money could of gone towards our dream home, saying that, the way I feel at the
moment, no home would be a dream home for me or my family with my mood being so low. The NHS will not consider the operation because they have turned a blind
eye so to speak to floater sufferers, because floaters are not easily measurable from anybody other than the patient, then it is easily dismissable, just tell
the patient that they are just not dealing with them and get them out the door. I have been advised from one opthamologist that it is impossible to measure or
exactly see what a patient sees, so therefore there would be no comeback for the NHS by not admitting them - admitting it means an extra cost to the NHS which
they do not have the budget for, they will dismiss anything they can get away with because the pressures they are under. The NHS are corrupt, I know a few
senior figures within the NHS and they would admit the same, it is all about money and figures, only the minority receive a level of appropriate care. I
recently had to have my gall bladder removed and the only reason we got it done so quickly was because my husband knew one of the gastro surgeons and he put us
to "the top of the list", not that I didn't need it, I was calling out the ambulance quite frequently, but I heard that the wait is usually up to
a year - a year with the pain I was in would of been unbearable, but there are people having to wait that year. I am sure if I knew one of the opthamologists,
an FOV would be easily arranged. I now have private medical insurance but my policy will not cover any pre-exisiting conditions for the next 2 years (one of
the better medical insurance covers).
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RICHARD W |
#11 | |||
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Hey Cherryblosom I'm not sure if you have approached the NHS about your floaters yet however I have been granted access to the operation if i really want
it and on both eyes too. Just to put myself in the picture I'm currently only 19 years of age and my floaters are in the hundreds. I'm currently waying
up the pros and cons of the operation and the NHS want to hear me out in 3 months time to weather i want to go ahead with the surgery.
This way at least I wont have to pay a penny for my operation. Secondly the Retinal Surgeon that interviewed me and looked at my eyes is a Highly regarded eye surgeon in the Midlands. All the other ophthalmologists refer to him as the Boss and the Main Man .... Hope this Helps from Rich
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cherryblosom |
#12 | |||
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Hi Rich, thanks for your advice, ever so sorry to hear about your millions of floaters but wonderful news that you have been offered an FOV on the NHS, can you
tell me what the deciding factor was? Can they be easily seen or is it the distress you are under? My larger floaters can be seen but not the smokey and sheet
likes ones which seem to layer over each others. What are yours like? Have you been told your vitreous is liquifying? I wonder how I could get a referral to
your retinal surgeon, because I feel that I am case closed with the eye hospital and phychologist door open. Do you know the name of your surgeon? Many thanks
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cancerian123 |
#13 | |||
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can someone tell me why the risk of RD increase in case of a myopic patient ??
@ cherry blosom as paul says u really should go for vitrectomy in your worse eye and get it done by Dr patel without worrying too much about your money !! till then....i think sunglasses help when you are outside...also try getting shades for your car side windows...i also wear a BLACK colored baseball cap quite lowered down which kinda blocks the upper visual field...lol... i m a medical student and i too have innumerable translucent floaters layers after layers without a few giant dark ones that have made my life a living hell only at the age of 22 !
Last Edited By: cancerian123 3-Nov-2009 19:19:45.
Edited 2 times.
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loulou |
#14 | |||
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Hi Cherryblossom
If at all possible try and get a referral to Moorfields in London as I know there are surgeons there that are sympathetic to floater sufferers. Also Ted Burton at The Norfolk and Norwich. I've sent you a PM. Lou |
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